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Other Resources

 There are a growing number of organizations that support adolescents and young adults who have cancer.  Here are links to relevant websites and most trusted sources for AYA cancers information and services for both patients and healthcare professionals.

Young Adult

The bulletin features articles, commentaries, and other resources on various topics such as the medical issues and psychosocial support needs of AYA cancer patients.

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This AYA portal offers links to resources for questions about cancer, its treatment, clinical trials, and issues that may be faced after treatment. It also contains links to research studies and reports.

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Closing the Gap: Research and Imperatives for Adolescents and Young Adults with Cancer. This 2006 report from the National Cancer Institute and The Livestrong Young Adult Alliance defines the AYA issue and provides recommendations.

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The Leukemia & Lymphoma Society (LLS) is the world's largest nonprofit health organization dedicated to funding blood cancer research and providing education and patient services.

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Vital Options, one of the first organizations to support young people with cancer launched the National Young Adult Cancer Awareness Week.

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The Young Adult Cancer program at the UC Irvine’s Chao Family Comprehensive Cancer Center is a leader in AYA cancer care. 

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The Young Survival Coalition is a forum for young women with breast cancer to learn more about their health and to connect with other young women facing the same disease. 

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This website has up to date and comprehensive information about Pleural Mesothelioma with information ranging from a complete list of symptoms, to treatment options and steps to take after a diagnosis.

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Coping and Support

Imerman Angels provides personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers.

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Founded by and for young adults affected by cancer, i(2)y is the nation's largest support community for the next generation of patients, survivors and caregivers between 15-40. 

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CancerCare’s services for patients, survivors, caregivers, and the bereaved–include counseling and support groups, educational publications and workshops, and financial assistance. 

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CanTeen - The Australian Organisation for Young People Living with Cancer - supports and empowers 12-24 year olds living with cancer.

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Teens and Adolescents

Teens Living with Cancer has information to help teens learn about cancer, its treatment, and how to cope. This site’s “Dealing with It” section talks about body issues, school, family, and friends, and it helps teens connect with other teens who have cancer.

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CureSearch provides information about cancer, and its treatment in a discussion board, and through patient stories. Their Adolescent and Young Adult (15-29 year olds) Research Committee focuses on childhood cancers that affect young adults.  CureSearch unites the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation.

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Fertility

This is a patient education resource provided by the Oncofertility Consortium of Northwestern University. 

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This is a LiveStrong initiative to provide reproductive information and support to cancer patients and survivors whose medical treatments present the risk of infertility. 

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Survival

YSC reaches young women with breast cancer through its online bulletin board, resource kit, DVDs, booklets, fact sheets, support groups, and a guidebook of national breast cancer-related resources.

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SeventyK Tips 4 Life

TipText: 
AYA patients are less likely to enroll in clinical trials than children or adults due to inadequate health insurance, lack of referrals and many clinicians don’t know of AYA trials. AYA participation is crucial to finding effective therapies. Many comprehensive cancer centers, university med centers, and pediatric centers- support AYA trials.

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from patients, caregivers and medical professionals dealing with this disease and many other diseases

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